We welcome Joanne to “Mother Earth” her ten-year-old epileptic son Ben has up to 300 seizures a day.
Joanne ten-year-old epileptic son Ben has up to 300 seizures a day. His condition improved after she gave him cannabis oil containing both CBD and THC that she imported from Canada.
Joanne asked her doctor at the Alder Hey Children’s Hospital to prescribe cannabis to Ben, but a new policy in the trust meant that his case was escalated to a panel of different doctors, which rejected her application.
She told The Sunday Telegraph: “Ben was doing really well on it. His seizures reduced to six a day, but it then ran out, and they went up,” she said.
“If a doctor gave our son that medication that is now available to them to prescribe and dosed it correctly, we know it’s going to work for him and stop his seizures.
“Ben was never ill over the period of time he had the oil.” His condition worsened and he was admitted to A&E ten days later.
In a letter discharging him from A&E, staff wrongly told Joanne, they were legally unable to prescribe cannabis oil to Ben, even though it had been legal for almost two months.
Alder Hey Children’s Trust said it does not comment on individual cases.
Another mother, Tannine Montgomery, asked a doctor at West Suffolk Hospital to prescribe cannabis oil containing THC for her daughter Indie, who has severe epilepsy.
Indie has been taking a combination of cannabis products that cost £1500 per month, illegally flown to the UK from the Netherlands, where they are prescribed.
In a letter, her doctor wrote that while Indie’s seizures were less common and her recovery was quicker on the oil, he was “duty bound” to follow the guidance of his medical director, and could not prescribe the medication on the NHS.
The trust passed Indie’s case to a different trust, which also rejected her application for oil containing THC. West Suffolk Trust said was unable to prescribe cannabis oil under BPNA guidelines.
An NHS spokesman said: “The decision to prescribe so-called medicinal cannabis is a clinical decision for specialist hospital doctors, in line with national medical guidelines drawn up by independent medical experts.
“Work is underway to develop further factual evidence about the precise circumstances where this might be appropriate.”
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